A key aim of the Child Trauma Data Archives is to make child trauma data more "FAIR". We help make these data findable, accessible, and ready for re-use by qualified investigators.
The Child Trauma Prevention and Treatment (CTPT) Data Archive is in development.
The Prospective studies of Acute Child Trauma & Recovery (PACT/R) archive has been the source for new analyses by investigators around the world, resulting in peer-reviewed publications, and Masters' and PhD theses. We welcome inquiries from investigators about using PACT/R data.
How do I request PACT/R data?
- Explore PACT/R data to learn about what’s available and identify data elements that can address your specific research question.
- Consider how others are using PACT/R data (see table below) in case there are opportunities to collaborate
- Contact the PACT/R team to let us know of your interest. (childtraumadata@chop.edu)
- Complete an online form (link will be provided by the PACT/R team) to tell us which data elements are requested, research questions to be addressed, intended outcomes / uses (i.e. publication, thesis or dissertation, teaching).
Each data request is reviewed by the PACT/R Steering Committee (3-5 investigators who have contributed data to the archive), using the following criteria:
- Stated research question(s) are in keeping with the overall aims of the PACT/R Data Archive, and can be appropriately addressed with the data requested
- Requestor has the training and experience to conduct the analyses (or trainees have appropriate supervision, documented with supervisor signature)
- Requestor describes appropriate measures for data security.
- Requestor agrees to acknowledge the PACT/R Data Archive in presentations and publications.
-
Requestor agrees that s/he will not re-release data obtained from the Archive to others.
How are PACT/R data being used by investigators around the world?
| Year | Country | Brief research question | Outcome / product |
|---|---|---|---|
|
2010 |
US, UK, Australia, Switzerland |
Examine proposed DSM-5 ASD criteria for children |
|
|
2014 |
Australia |
How are PTSD symptoms expressed in children age 7-14? |
Completed PhD thesis - preparing for peer-reviewed publication |
|
2015 |
US |
Examine impact of male vs female caregiver distress on development and maintenance of child PTSS |
In progress |
|
2016 |
Canada |
Examine age effects on distribution of self-reported pain scores. |
Use in teaching about pediatric pain management |
|
2017 |
UK |
Can children with ASD who go on to develop PTSD be distinguished based on initial symptom presentation? |
Completed PhD thesis - preparing for peer-reviewed publication |
|
2018 |
US |
Computational modeling and machine learning to build predictive models for child PTSD |
NIH-funded project using PACT/R as a key data source |
|
2018 |
UK |
Network analysis: is there consistency of PTSD symptom networks across the lifespan? |
Conference presentation; preprint |
|
2019 |
US |
How does parent PTSS relate to concurrent and later child PTSS? |
Completed Masters thesis - preparing for peer-reviewed publication |
|
2019 |
Europe - multiple |
Latent class analysis of acute PTS symptoms and prognostic value of these subgroups in children after trauma exposure |
|
|
2019 |
UK |
How do sex differences in child PTSD symptoms emerge over development? |
|
|
2019 |
UK |
Examining the accumulative effect of PTSD risk factors using machine learning approach. |
Doctoral project in progress; Manuscript under review |
|
2020 |
Australia |
In children with PTSD resulting from TBI – does parent-child relationship mediate PTSD outcomes and child recovery? |
In progress |
|
2020 |
US |
Impact of parent factors on child outcomes after traumatic medical experience. |
Doctoral project – in progress |
|
2020 |
US |
How do pre-trauma ADHD symptoms and attention deficits affect PTSS? |
In progress |